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Author Topic: Well My Camaro online Compadres, Time for a fight of my Life!  (Read 4189 times)
dannystarr
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« on: March 03, 2014, 12:27:19 AM »

Well guys, long story short I got myself a case of the Cancer. I found 3 large tumors in my throat Jan 1st of 2013 while shaving. I checked the other side and of course there was nothing there. Had them tested 7 months later and they all came back malignant. A couple of you know about this already. I have thyroid Cancer. If it was just regular thyroid Cancer it would be a snap. While this would normally be a 45 minute to 1 hour operation, it is deep in my limp nodes and behind my clavicle. Which they can't get to. Went to a hospital in San Francisco and got the bulk of the bad news. Anyway, I go to the city tomorrow, then the 6 hour surgery is Tuesday at 6am. Then radioactive iodine treatments, and radiation after that. If all that doesn't work, then I was told to get my affairs in order. They gave me a 65% chance of survival. While I wish it was 90%, it's surely better than 30%.
 I know none of you are my personal friends, but just wanted to say... just in case... it has been SO FUN hanging out with you all online. I am sorry if I hurt anybody. Take Care of yourselves and I will hopefully be back online after all this recovery and treatment is done with. Over and out... Danny
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« Reply #1 on: March 03, 2014, 01:21:35 AM »

Danny,
Even though we don't know each other I have enjoyed many of your comments and posts since being a member here on CRG. I know that you are in a battle but it is a battle that you can win! I have an Uncle that is like a brother to me that is fighting the same battle, so your post touched me. They can do some amazing things these days so keep the faith and hope. As we all get older we start to realize how short life really is so we must enjoy and appreciate each day like it could be our last.
From one Camaro lover to another I want to wish you all the best and Godspeed. Please keep us posted.
Len
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« Reply #2 on: March 03, 2014, 01:35:17 AM »

Hi Danny this is Gary...I'm keeping my fingers crossed for you man. I know there isn't much any of us can say but I'm sure there are many pulling for you right now. Think strong Danny.
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« Reply #3 on: March 03, 2014, 01:38:24 AM »

Danny, words aren't easy at a time like this, but let me say my thoughts are with you and I wish you all the best for the days ahead.
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« Reply #4 on: March 03, 2014, 03:08:53 AM »

Fight the good fight, and pray. Others will join you.
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« Reply #5 on: March 03, 2014, 04:53:04 AM »

My prayers and thoughts to you.
Fight the battle and always look on the positive side.
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« Reply #6 on: March 03, 2014, 07:57:02 AM »

You will be in my prayers also Danny.
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« Reply #7 on: March 03, 2014, 09:22:52 AM »

Good luck to you.
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Fred - Milwaukee, WI
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« Reply #8 on: March 03, 2014, 10:03:35 AM »

Prayers and good thoughts for you Danny. Be strong
Bill
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« Reply #9 on: March 03, 2014, 10:52:38 AM »

Danny, you'll have a whole church full of people in Aloha, OR praying for you.
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68Z28
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« Reply #10 on: March 03, 2014, 11:32:49 AM »

 Huh Angryím not sure what to say, but I want you to know I care.
Iím sorry to hear that you are going through this.
If you would like to talk about it, Iím here.
Iíll keep you in my thoughts and prayers
Danny, you might not know it, but as a Camaro brother, I always feel my friendships and connections to people on here, CRG, are real and valuable and I and others will be here and walk side by side with you so you do not have to go alone in what can be a lonely time. Our brotherly love is with you. I will say, I have always enjoyed your posts and what you share and you must feel a closeness to us, members, to share your personal struggles. God be with you now and always. B.
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« Reply #11 on: March 03, 2014, 12:39:40 PM »

God bless, and keep swinging ! Last year one of my co-workers discovered he had it in his gall bladder I believe--thought he was passing a kidney stone. Very stubborn guy..great firefighter ,Lt., husband and father. Gave him very low end on the scale. We heard/read 18-30%. His boy plays b-ball for Ohio State ( he was the one who walked on the court last year during play offs) so he put the surgery off a week or two to watch him play. They were not sure how the surgery would go...this was last year and he is back to work full duty. Cancer and heart attacks hit FF's way above average, the guys I know who immediately addressed the issue head on/ASAP are back to work or enjoying retirement. Mind you he put it off with the ok from the medical team. Keep in touch.
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« Reply #12 on: March 03, 2014, 01:08:23 PM »

keep fighting as i have a friend who is a 9 year survivor of pancreatic cancer surgery. don't give up
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« Reply #13 on: March 03, 2014, 01:33:04 PM »

Hey brother, keep the quick wit and positive attitude and you will beat it. Keep in mind we will all be here praying and waiting for you to sign back in when your up to it.

 Smiley

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« Reply #14 on: March 03, 2014, 04:05:58 PM »

Danny....I understand your anxiety....seven years ago on March 1, I had surgery for late stage prostate cancer.  I still have some anxiety, even today, but I have managed to live an eventful life.  As a brother in the hobby and also as a brother in cancer survival, I hope and pray that you will also conquer and survive your cancer to live a long, eventful life.  Good luck and God bless you and yours.

Jerrry D. Gortney 
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« Reply #15 on: March 03, 2014, 04:37:40 PM »

I'm praying for you danny , stay strong and I know you'll beat this thing.
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« Reply #16 on: March 03, 2014, 06:39:50 PM »

Danny,  Mine and my famlies thoughts and prayers go out to you.  STAY STRONG.
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« Reply #17 on: March 03, 2014, 07:04:33 PM »

That is rough news for you to hear.   Our prayers are with you.   Keep your spirits up.
 My beloved wife Kimberly is a cancer survivor of over 13 years.   It was pretty rough for her in the winter of 2000; surgery, chemo, radiation.   Thank God she recovered and is cancer free.    There is not a day that goes by that I do not thank God.

I will pray for you.      Jim
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« Reply #18 on: March 03, 2014, 07:47:48 PM »

As others have said before me, I really don't know what to say either. News like this impacts so many, including the family and close friends.  So on behalf of all my fellow CRG friends, we wish you, and your family the very best.  You will be on the minds of many from this site.

TMR
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« Reply #19 on: March 03, 2014, 08:13:31 PM »

Hey Danny, I'm a stage 4 throat cancer survivor. Three years ago last thursday i finished my last radatation treatment. It's not an easy road but sometimes a road some of us have to travel. without the mercifull grace of God i would not be here today. I urge you to lean on Him and don't loose the Faith. I think you and i shared some thoughts back when i was sick. PM me please.

In Christ Love,
richard
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« Reply #20 on: March 03, 2014, 08:51:23 PM »

Danny, I'm praying for you man.  I know how scary this is.  I just had Kryogenic Prostate surgery 6 weeks ago, still on road to recovery but seems to be going well.  Was watching it for over a year, they knew they really caught it early(only 5% in 1 of 24 samples)but #'s kept going up.  So decided to go ahead.  I will always remember one of the first things my Dr. said to me when he broke the news.  Cancer is that 1 word you never want to hear, it is very scary, even to the toughest of us.  My heart is with you man.  Best of Luck, and hurry back.
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« Reply #21 on: March 03, 2014, 11:01:46 PM »

I'll be praying for you, Danny.  Hope you have a complete recovery. 
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« Reply #22 on: March 04, 2014, 01:39:47 PM »

We're all praying for you Danny -

Richard
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Richard Thomas
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« Reply #23 on: March 04, 2014, 01:57:58 PM »

hang in there ,, your not alone, hell as it turns out you have a whole bunch of friends here.
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« Reply #24 on: March 04, 2014, 02:54:46 PM »

hang in there ,, your not alone, hell as it turns out you have a whole bunch of friends here.

Especially 1968RSZ28, who is praying for you Danny.  Think positive!   Smiley

Paul
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paceme
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« Reply #25 on: March 04, 2014, 03:33:40 PM »

Danny, thoughts and prayers. I had thyroid cancer 3 years ago, however mine was localized and in only a few lymph nodes. Stay strong and be positive and before you know it you'll be back better than new.
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« Reply #26 on: March 04, 2014, 10:13:07 PM »

Hang in there Danny. We are all pulling for you. By the way, we ARE all your friends here. Check in often, keep us advised of your progress.
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« Reply #27 on: March 04, 2014, 10:52:00 PM »

In his first post he said he was scheduled for 6 AM surgery today, so he should be in recovery by now. Anybody live close by Danny? Maybe we can send him some flowers somehow. I'd be wiling to fork out some cash.  
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GaryC

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« Reply #28 on: March 04, 2014, 11:06:04 PM »

Well there are two of us so far ready to get involved, but how do we go about doing this? We'll need an address and room number for sure. It sure would be a nice surprise to show Danny we are pulling for him. Any ideas? I'd be willing to pay the bill and say it was from all the CRG gang.
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GaryC

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« Reply #29 on: March 04, 2014, 11:46:32 PM »

Anyone know Danny's last name?  Is it Starr?

Paul
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« Reply #30 on: March 05, 2014, 11:14:44 AM »

http://www.camaros.org/forum/index.php?topic=9430.0

At least we know his first name.  Kurt could get it, but he'd have to ask Daniel first.
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68Z28
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« Reply #31 on: March 05, 2014, 04:15:59 PM »

From yenko.net:

Profile for dannystarr
   
Member #:      18331   Online   
Title:      newbie 
Total Posts:      0 
Registered on:      01/25/14 04:02 AM 
Add to UBB Buddies | Ignore this user | Add to Watched Users | Show User's Posts
About Me
Real Name:     Daniel Cannuli


also from a post on the CRG:
Quote
I also am in Northern CA. In the Wine Country about 42 miles north of the Golden Gate Bridge!
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« Reply #32 on: March 05, 2014, 06:57:49 PM »

You guys do whatever I'm in, shoot me an email and I'll send whoever's running with this the coin---steve
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« Reply #33 on: March 05, 2014, 07:34:26 PM »

I'll chip in on the flowers.  I can send you money via pay pal if you have account, or send you some money.....Just let me know how much you want me to contribute.

TMR
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« Reply #34 on: March 05, 2014, 07:40:24 PM »

count me in for a donation too, i think it will really brighten up his day
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« Reply #35 on: March 05, 2014, 08:10:34 PM »

Good luck and god bless
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« Reply #36 on: March 05, 2014, 09:17:50 PM »

We will keep you in our prayers Danny.  God Bless You! Scoop
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« Reply #37 on: March 05, 2014, 09:40:06 PM »

So do we have a good address? Home or hospital? I was thinking going on line to get a plant or flowers, I'm thinking a plant would be better, it would last longer. I would pay for it and just say it was from all the guys at Camaro Research Group. What do you think? I don't have a problem with this if you guys think it's ok. Just need a good address.
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GaryC

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« Reply #38 on: March 05, 2014, 09:46:08 PM »

How about this guys?

http://www.ftd.com/get-well-pcg/lucky-bamboo/occasion-getwell/1p20/?sid=1
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GaryC

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« Reply #39 on: March 05, 2014, 10:10:31 PM »

With a bunch of google searches, I might have found his address and phone number, but I couldn't find a street number.

*Removing his info. Take it to Personal Messages as needed.* - Kurt
« Last Edit: March 06, 2014, 01:16:41 PM by KurtS » Logged

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« Reply #40 on: March 05, 2014, 10:28:18 PM »

A white page search in California only has a PO BOX 74  in Sonoma. For only one Danny J Cannuli. I don't think we'll get this done with out some solid address.
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GaryC

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« Reply #41 on: March 06, 2014, 11:58:03 AM »

I assume he went to SF for the surgery, but I don't think hospital give out patient info anymore.

Let's respect his privacy and keep his address info off the forum. Thanks!
« Last Edit: March 06, 2014, 01:19:36 PM by KurtS » Logged

Kurt S
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« Reply #42 on: March 06, 2014, 04:11:02 PM »

I assume he went to SF for the surgery, but I don't think hospital give out patient info anymore.

You're right Kurt.  I tried calling several hospitals in San Francisco (I'm in Silicon Valley) to find out Danny's status and see if he could have visitors yet.  The hospitals couldn't tell me anything due to patient privacy laws.  So even though everyone's heart is in the right place, we'll have to wait for Danny to check back in.  Hopefully, the surgery was successful.

Paul
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« Reply #43 on: March 06, 2014, 05:57:39 PM »

HIPPA
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69Z28
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« Reply #44 on: March 06, 2014, 06:10:06 PM »

Actually its HIPAA.  http://www.hhs.gov/ocr/privacy/

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« Reply #45 on: March 06, 2014, 07:27:12 PM »

finger happy
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« Reply #46 on: March 07, 2014, 12:17:31 AM »

Just reading this thread now...Danny give 'er hell man!!!

Best wishes
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« Reply #47 on: March 07, 2014, 11:33:11 AM »

Prayers here.
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« Reply #48 on: March 07, 2014, 06:31:16 PM »

I just know when you read this Danny things will be in a more positive direction. I went through Prostate Cancer and will be thinking and praying for you.
As others have said, we are with you as ONE.
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« Reply #49 on: March 08, 2014, 09:19:43 AM »

Good luck Danny. Prayers for you and your family. I've had other friends pull through this.
Stay strong and positive.

John
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« Reply #50 on: March 08, 2014, 12:47:09 PM »

Prayin' for you danny!
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« Reply #51 on: March 08, 2014, 01:00:50 PM »

Stay strong in spirit, positive in the outcome. Rev it high!
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« Reply #52 on: March 09, 2014, 08:52:15 AM »

Danny keep a positive attitude, and stay strong. Prayers and thoughts will be with you.

Lawrence
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« Reply #53 on: March 12, 2014, 10:25:10 PM »

Just read the post.  Danny I hope your recovery is going well.  Thoughts and prayers to you and your loved ones.  You can beat this!

Dennis
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« Reply #54 on: March 16, 2014, 10:38:52 AM »

Anyone have any news on Danny?
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« Reply #55 on: March 16, 2014, 11:35:08 PM »

Anyone have any news on Danny?

  Anybody, hear anything?
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« Reply #56 on: March 17, 2014, 12:13:14 AM »

Still waiting.
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« Reply #57 on: March 19, 2014, 01:48:10 PM »

i can assume from reading its crunch time, man i know how he feels, update us !!!!
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« Reply #58 on: March 20, 2014, 04:45:22 PM »

Getting a little worried. Seems we would have heard from Danny by now.
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« Reply #59 on: March 30, 2014, 08:21:59 PM »

Has anyone heard from Dannystarr. It's been quite a while since we last heard from him regarding his situation.  Wish him and his family the best possible outcome.

TMR..
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« Reply #60 on: March 31, 2014, 10:15:30 PM »

havent been online much lately, but wishing you and your family the best prays sent
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« Reply #61 on: April 10, 2014, 06:30:13 PM »

HOLLY CRAP... Thank you all SO MUCH!!! What a HUGE out pouring of support. I never have seen anything like it. I don't know what to say..  Grin Grin

 I guess I better start by saying thank you all very much for leaving this post up. I guess it's pretty non-related but I felt compelled as I enjoy being here with you guys.
The surgery was 6 hours! Recovery at one friends house for 8 days, then another friends for 4. With my Dads property issues, and his dementia, and other friends with heart attacks, computer probelms and the whole game of life, I have neglected to keep up with email etc. Talk about good friends... I was given 10K CASH to help with my bills. Don't have to pay it back!
 The surgeon told me he could take a thyroid out in less than an hour with a steak knife. BUT, I had 3 big tumors that had to come out. And 20 lymph nodes. 18 had Cancer. So it was a central and a left node dissection. He said he hasn't had to cut like that in a long time. I am still pretty dizzy when I look straight up or straight down. I guess it takes a while to get all that medicine out of me that they used to knock me out. Crazy!! So missing a lot of work and trying to do some small jobs. I go on a special no iodine diet for 14 days. Then I take the radioactive iodine treatment and go in to isolation for 7 days. Can't be with-in 7 feet of anybody for those 7 days or they could get infected. Hopefully that does it and no radiation. I am rambling now, you all get it. Thanx and looking forward to catching up on all the fun posts on Camaro's. No worries on my info being private.
Daniel J. Cannuli is correct. Address and phone number if it's ever needed not a problem. And I WAS and will be back at UCSF in San Fran. Nice detective work... Over and o... wait a minute, I am not OUT yet. Danny...
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« Reply #62 on: April 10, 2014, 06:36:18 PM »

WTG Danny

Your a trooper man, with 7 days of isolation, you will have plenty of time to post on here....and then soon you can resume your search for A Camaro!

In the mean while just tune into KNBR 680 and root on the S.F. Giants with me ! (tonights game is at 7:15)

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« Reply #63 on: April 10, 2014, 06:40:05 PM »

Over and....not Out yet...Thank God for that, Danny. So glad you are back, hang in there. You have a lot of catching up to do. In your posts reading, try not to laugh too hard...don't want any wounds coming open, ya know. Gosh, you were missed and prayed for by many. We were all in this together.
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« Reply #64 on: April 10, 2014, 07:35:42 PM »

Welcome back, Danny!  I'm glad everything went well for you.  Smiley

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« Reply #65 on: April 10, 2014, 07:52:22 PM »

X2 here Danny. Glad you are back on the pavement and getting back up to speed. Take is easy for the first few months and your recovery will be much better for the long run...

TMR
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« Reply #66 on: April 10, 2014, 09:00:11 PM »

Welcome back from one Danny to another!
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« Reply #67 on: April 10, 2014, 09:38:04 PM »

Wheww ! Good to see your post Cheesy
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« Reply #68 on: April 10, 2014, 09:56:25 PM »

Thanx again, yes it is scary as it seems some of you lived it already, and in more ways then one. I actually take care of my Father about 35 weekends a year. And live in a 33 foot 5th wheel on his property. Gave up a HUGE place with a couple thousand square feet of dry storage. But he is 84 and my Mom died of liver Cancer in 04', so gotta do it. I can't stay in the trailer cause I am not hooked to the sewer. The tank gets pumped every 3 weeks or so. BUT, it could poison the guy, his helper and anybody close by. So it's off to my friends house again.
 
 I don't think there is a Camaro in my future. At least not near. It was 100K JUST for the surgery, I have to pay 30K of that! And as you know, the list goes on and on. Never ends, good times, living the American dream..

Go Giants!!

 Danny Starr...
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« Reply #69 on: April 10, 2014, 10:50:16 PM »

Welcome back Danny. It's just a matter of time now to get all the healing done. With all that you have to do for yourself, and taking care of your dad as well, you have quite a bit on your plate. Who takes care of you? No MRS. right?
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« Reply #70 on: April 10, 2014, 11:10:22 PM »

Danny welcome back, awesome to see you back on here and pay us a visit !!!!!!!!!!! take care
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« Reply #71 on: April 10, 2014, 11:53:43 PM »

Danny, glad to see you back here, and I wish you well on the road to recovery and eventually getting back into a Camaro!
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« Reply #72 on: April 11, 2014, 05:21:23 AM »

Danny, glad to see you back here, and I wish you well on the road to recovery and eventually getting back into a Camaro!

I'll drink to that and agree! Great news Danny and here's to ya!
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« Reply #73 on: April 11, 2014, 05:50:33 PM »

Great news Danny - hope all continues to go as planned, both with your recovery and your dad.

Take care.

Richard
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« Reply #74 on: April 11, 2014, 06:22:20 PM »

When you are well enough I have a couple of tickets to a Giants game for you !!!!!
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« Reply #75 on: April 11, 2014, 09:07:43 PM »

glad to see you posting, and hope for a speedy recovery
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« Reply #76 on: April 11, 2014, 09:16:50 PM »

Good to have you back Danny!
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« Reply #77 on: April 11, 2014, 11:29:29 PM »

We were all worried about how the surgery went Danny. I know that no news is good news, but your mind starts messing with you after a while! Glad to see you posting. Keep up the good work.
Buddy
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« Reply #78 on: April 13, 2014, 04:10:23 PM »

Glad to see you back on here Danny.  Been thinkin' about you.  Just do as the Drs. say and take it easy.
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« Reply #79 on: April 17, 2014, 09:00:17 PM »

Great to have you back man!  Wishing you a speedy recovery and all the best.
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« Reply #80 on: April 18, 2014, 01:57:47 AM »

Again thanx, no Mrs. Starr, just me. 53 and trying to make it all happen. So I will be online for about another 3 weeks. Then extreme diet treatment, and then the radioactive stuff. I appreciate all the support. Danny
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« Reply #81 on: April 18, 2014, 07:13:14 AM »

Glad to see you back as well !!! God speed with your next round of treatments...But don't wait so long the next time before you/someone  lets us know, how you are doing.

TMR ...
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« Reply #82 on: April 18, 2014, 08:02:34 AM »

Hurry up. The Giants have been winning....
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« Reply #83 on: April 18, 2014, 12:02:42 PM »

Weather is breaking here in Ohio ,get a little sunshine out were you're at !  Remember,  Camaro's rule ! LOL
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« Reply #84 on: April 18, 2014, 12:06:51 PM »

We're all thinking of you and wishing you the best, Danny.   
Keeping a Positive, 'can do' attitude is 90% of the battle, as we know you will!! 

Gary
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« Reply #85 on: May 20, 2014, 12:36:26 AM »

Well tomorrow is the beginning of treatment. I will be dropping some test pills for scans and TSH and Hemoglobin levels. Then Wed. at 11am is more scans and testing levels to see if my body is Hypothyroid enough and ready. Then "Radioactive Iodine" Pill drop that same day at 3pm. Good times... NOT!!  Been on a no Iodine diet now for 16 days! Got about 10 more days to go on that diet. Killing me, I want a piece of cheese, bread, dairy, salt, salmon, shrimp...ANYTHING. I will take just a tuna sandwich, or a tomato and mayonnaise sandwich. ONE piece of bread!  After taking pill, full isolation for 7 days from any living being. Then a whole body scan on the 28th or 29th to see if we got all the Cancer, especially behind my Clavicle. I just went back and read all your past emails and got my self feeling much better. What a great boost seeing all that, as I really needed it. I appreciate it. I will have access to a computer, but not my own. I live in a 5th wheel and it's not connected to the sewer so no can stay here. Going to be at the girlfriends house, and she will go to the neighbors for a week. Boy she has REALLY taken care of me with lunch and dinner everyday for those 16 days. Lots of salads and avocados, veggies and SOME fruit. She really read that American thyroid association treatment cook book and made it happen. Whipping up and modifying anything she can to try and get some flavor out of it. Hours and hours of shopping and prep work. Anyway, she has a laptop I can use to check messages.
 By the way, surprise... she seen me looking at cars online, asked me some questions and bought me a Camaro. Not kidding! When the title shows up I will share year, color, pictures and info. Car arrives in two or three weeks. But no info yet, ya gotta wait  Wink Wink Grin Grin

  OK... so, please do not reply here. Lets save valuable space on this site for Camaro etc. related discussion. Here is an email address assuming ya wanna shoot me something. Take care, wish me luck, luv you guys... Danny
               
       djc1@sonic.net

       
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« Reply #86 on: May 20, 2014, 12:41:23 AM »

WOW, what a lady! Sounds like you have a win win situation on your hands, now for the doctors to do what they do best and follow your health closely. I loo forward to seeing you back.
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1969 garnet red Z/28 46k mile unrestored X77
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« Reply #87 on: May 20, 2014, 01:13:18 PM »

There are still good ones out there Danny! She sounds like a keeper. Keep us in the loop. We are all praying for you dude!!
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« Reply #88 on: May 20, 2014, 01:30:03 PM »

Good to hear from you again.  Sounds like a long road to full recovery, just be sure to take it easy and do as the Drs. say.  Taking it  easy is hard for me(I had Prostate cancer surgery Jan. 20) but just gotta do it.  That first month was hard (sitting on my hands, LOL!)  I'm back to normal now, I like to keep active.  3 month check up my PSA is 0.04.  Woohoo!!!!
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« Reply #89 on: May 30, 2014, 10:06:52 PM »

Lots of people going thru some poop for sure. I wish you all the best! Email me if ya like. I will have Kurt remove the entire posting when this is all over to save space. Thanx again to you all..   djc1@sonic.net

  WELLÖ
 Things seemed to be moving along well. I went to UCSF on the 20th and took 10 pills as prep for tests the following day. Needed to have a low TSH level after my 14 day low iodine diet. In those 14 days I didnít wanna cheat so I only had 2 cornuts and 1 pistachio the whole time. No other salts. No other dairy, salts, fish, bread basically anything in life that tastes good. Lots of baked chicken and lettuce wraps with avocado and tomatoes. And a few other things if you get creative. You can have meat with very little on it. No processed food, salt free ketchup and so on. So the lower your TSH count is, the higher the number. 30 and they wonít treat you, as you have obviously been cheating. 40 and they will treat you IF they can get permission from your endocrinologist. Sometimes they do, sometimes you have to start all over. 50 is ideal and thatís where you need to be to walk right in the next room and get treatment. I was 53.6, so I was good. They WANT you to go into Hypothyroidism so your body craves iodine BAD. Then drop the pills and they go right at the Cancer and kill it, attacking bad cells only. RAI treatment has been around for 50 years! So on the 21st, I went back to UCSF and had some blood work done and hemoglobin testes and the like. Then a CT scan where I could not move for 25 minutes while they took pictures of my whole body. WBS = whole body scan. RAI = Radio Active Iodine. Only can blink your eyes. Then went into the next room and had an hour long meeting about the difference between exposure and contamination. And blah blah blahÖ Then took 2 heavy doses of Radio-Active Iodine Treatment. Then run down the steps and out the door. Then left there fast and straight home to isolation at a friends for 7 days. No riding on buses, sharing a cab, holding babies or animals or being around a pregnant woman as it could kill the baby.
  Went down for another scan yesterday to see progress. My endocrinologist called me today with good and bad news. Good news = there is no Cancer anywhere else in my body. As there was a time where it was in a couple other places. Bad news = Cancer is still very present in my neck and throat area. Meaning the treatment did not get all the Cancer. I asked her if the medicine will continue working and she said not likely, as it is at its strongest at 48 hours. Then down from 100% to like 6 %. Then hangs around for a little longer and that is it. 8 days later and I am out of isolation and no longer a threat to anyone. Which means itís probably done working. It MAY still have a little left to help eat away some of the residual Cancer, but not likely. Surprising as they gave me a VERY heavy dose. Had to put it in 2 pills. 15 thousand dollars a pill that the insurance does NOT pay for. Good times ehÖ So back to regular life for now, whatever THAT is.. and trying not to stress out. Not easy to do for sure. I was really hoping she would say we had a zero tumor count. I guess they are not really tumors, thatís just what they call it as a whole. So I asked her to give it to me straight and she said and I quote,Ē It doesnít look good, and I am very concerned. I thought it would be Zero, or at least a lot lessĒ   End quoteÖ
 So no way to start more treatment right now, as the body needs to recoup. Then back to UCSF on August 18th to see where things stand and another WBS. THAT scan will tell her whether or not I start another RAI treatment in 6 to 9 months. Basically start all over again. ( Or pinpoint Radiation in Petaluma, CA. I guess they go in you and plant little chunks of Gold inside ya. Then zap THAT area and the gold keeps treatment close to the Cancer. ) If the masses that are left are too big, they do NOT do another RAI as it will do no good, and itís straight to pinpoint radiation. I was told to NOT get my affairs in order just yet. I guess at least THAT'S good news.
 Thatís it I guess. Thatís the short version. Next update after August 18th? Danny
 




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« Reply #90 on: May 31, 2014, 12:40:28 AM »

Praying for you Danny.  There is strength in numbers.
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« Reply #91 on: May 31, 2014, 04:24:01 AM »

Thinking of you and your good lady Danny, keep positive and know that we are there for you.
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« Reply #92 on: May 31, 2014, 06:54:17 AM »

Hang in there buddy!
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1969 SS/RS 396 coupe Hugger Orange X22 712 bought in 79
1969 SS 350 coupe LeMans Blue 713 bought in 79
1969 307 4spd. coupe Daytona Yellow 711 bought in 85
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